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PVNH Support & Awareness
A non-for-profit organization created in 2009 as a legacy for her Ella Dupont Bedassie. PVNH Support & Awareness connects families together and educates patients, family members and medical professionals about Periventricular Nodular Heterotopia.
Over the last several years, we have worked with neuroscientists and computer engineers to develop new brain function analysis technologies that enhance our ability to see how the brain functions as a complete system.
To promote worldwide awareness of Multiple System Atrophy during the month of March, and all year long.