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Salem Oaks, LLC
Committed to working with patients, their advocates, biopharmaceutical companies, regulators and other stakeholders
to develop educational tools that help patients bridge the gap between themselves and Biopharma research ad development.
TREND Community is an invitation-only network of consented patients and caregivers living with rare disease who are engaged in community powered science.
PVNH Support & Awareness
A non-for-profit organization created in 2009 as a legacy for her Ella Dupont Bedassie. PVNH Support & Awareness connects families together and educates patients, family members and medical professionals about Periventricular Nodular Heterotopia.
The Charlotte & Gwenyth Gray Foundation
The Charlotte & Gwenyth Gray Foundation to cure Batten Disease was founded to raise the estimated 10 million dollars necessary to fund the urgent medical research to save the lives of all children devestated by Batten Disease.
Boston Biotech Clinical Research
Boston Biotech offers strategic consultation to provide your CRO with a detailed clinical trial planand FDA strategy to ensure speed to market and reduce costs.
I started making Pulmonary Hypertension Awareness bracelets for myself but after posting a picture of it on one of the PH Facebook pages, others asked to buy them.
CADASIL Association, Inc.
The mission of the non-profit CADASIL Association is to raise awareness of CADASIL, ensuring it will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed.
Project Alive is the world's leading 501(c)(3) Hunter Syndrome research and advocacy foundation. Project Alive raises awareness of Hunter Syndrome globally, funds curative research, and advocates for patients and families affected by Hunter Syndrome.
"Ilustrando.com" is a Spanish forum of illustrators. A group that not only shares an occupation and a passion but also humanitarian interests. They put all this together in their book "Illustrating. Right now".
Batten Disease Support and Research Association
501c3 organization dedicated to supporting families with children affected with Batten Disease, a fatal childhood disorder. The BDSRA also funds research searching for a cure for this degenerative disease.