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Austin, TX – An Austin-based Indian immigrant family is seeking community support for their 10-year-old daughter, Akira Kshatriya, who is battling a rare and progressive neurological disorder known as Leukodystrophy (Alexander disease).
Akira was diagnosed in early childhood with this genetic condition that damages the white matter of the brain. Over time, the disease has led to severe developmental delays, muscle stiffness, seizures, difficulty swallowing, and loss of mobility. She is currently dependent on gastrostomy (G-tube) feeding and requires full-time assistance for daily living.
As her condition has progressed, physicians are evaluating advanced treatment options, including potential stem cell or bone marrow transplant procedures. Estimated transplant costs can range from $300,000 to over $1 million. In addition, ongoing expenses for therapies, medications, nutritional supplements, assistive devices, and emergency medical care exceed $50,000 annually.
Akira’s mother left her job to provide full-time care, leaving the family reliant on a single income while managing significant out-of-pocket medical expenses and limited insurance coverage. Without extended family in the United States, the family has carried this responsibility largely on their own for eight years.
To help offset mounting medical costs, friends and community members have launched a fundraising campaign with an initial goal of $300,000 as part of a broader long-term care plan estimated between $950,000 and $1.5 million.
Contributions will directly support:
• Advanced medical procedures and transplant evaluation
• Physical, occupational, and speech therapies
• Medications and specialized nutrition
• Assistive equipment and critical care needs
• Ongoing neurological treatment and emergency support
Community members, organizations, and local businesses are encouraged to contribute and share Akira’s story. Every donation, regardless of size, helps provide continued access to essential medical care and offers meaningful support to a family navigating a complex medical journey.
Support Akira Kshatriya and help save her life by donating at the official GoFundMe page:
https://gofund.me/fa5416714