CADASIL Association, incorporated as a New Jersey non-profit organization in 2012, is dedicated to CADASIL patients and their families. We recently received our federal 501(c)(3) status approval. CADASIL Association is run by a Board of Trustees made up of volunteers including CADASIL patients, family members of CADASIL patients, and others touched by this genetic disease. We bring a variety of knowledge and experiences to the association. We welcome all interested parties as members.
The mission of the CADASIL Association is to raise awareness of CADASIL, ensuring it will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed. We are dedicated to helping patients, families, caregivers, and other supporters touched by CADASIL. We aim to unite patients and the medical community toward the common goal of treatments and ultimately a cure for this rare genetic disease, by promoting Communication, Advocacy, Research, and Education.