Project Alive is the world's leading 501(c)(3) Hunter Syndrome research and advocacy foundation. Project Alive raises awareness of Hunter Syndrome globally, funds curative research for the disease, and advocates for patients and families affected by Hunter Syndrome. Campaigns by Project Alive have garnered celebrity and broad media attention. Currently Project Alive is funding the first gene therapy clinical trial in Hunter Syndrome, expected to enroll in 2018.
For more information, visit ProjectAlive.org. Project Alive was formerly named Saving Case & Friends, Inc.
Project Alive was founded by Melissa Hogan, a lawyer by training, writer by passion, and advocate by necessity, and is dedicated to her son Case’s fight against Hunter Syndrome, which affects an estimated 2,000 boys worldwide.